Stories from ALS Families

For some years, my wife Robyn and I had looked for a property to establish a conservation and forestry block with a stream and medium gradient. In 2019, Robyn found such a property at 240 Ryan Road, just ninety minutes…

In 2007 I was diagnosed with ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s disease, although nowadays everyone associates the disease with the image of Dr Stephen Hawking. ​ ALS is a terrible and devastating terminal disease, with no…

I never envisioned growing old this way. I always thought I would work and retire, do volunteer work, travel with my husband Bill, and spend quality time with our sons, William and Michael. I would clean my house, try new…

A year has come to its end. Another year. A crazy year. Hell, what a year! It would be easy and not untrue at all to write about all the loss, the pain, the sadness and the struggle, because it…

In June 2015, I was sitting alone in my doctor’s office, waiting on the results of an EMG. I was focusing on positive thoughts when into the room they walk, box of tissue in-hand. I’m thinking ‘this can’t be good.’…

Here are my suggestions which I hope you find useful as you face the challenges of living with ALS. I wish I had someone who had talked straight with me from the very beginning of my diagnosis. I share with…