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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide
April 26, 2017

Are You Facing High-Cost Treatment Options For ALS?

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“Parents of children with a rare disease called spinal muscular atrophy (SMA) were thrilled...when regulators approved the first drug to treat this condition. But since, some parents have fought to get their insurer to pay for the medicine. The drug’s list price is $750,000 for the first year and $375,000 annually thereafter.

Cost is typically a huge problem in the world of breakthrough drugs. Drug makers say their high prices are justified by the many millions of dollars sunk into research and testing on experimental medicines, many which never make it to clinical trials.” To read the full article, please visit http://www.bostonglobe.com/…/QnBmQrcmLLfUwvJunn…/story.html….

Drugs produced by big pharmaceutical companies should not bankrupt families of those fighting ALS. ALS Worldwide endorses drugs that we feel are both worth the cost and beneficial. The newest trial pharmaceuticals we endorse are Edaravone and Masitinib, each of which recently passed Federal Drug Administration (FDA) III trials and provide great hope.

ALS Worldwide warns against treatments that come at too great a financial cost for patient families, and we endorse protocols that benefit already financially-stressed families. When you submit an online profile (https://alsworldwide.kindful.com/register/online-profile-form) we will help determine the appropriate treatment for you with cost and benefits in mind.