Contact

ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-414-831-6879.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
1800 North Prospect Avenue, Suite 4B
Milwaukee, WI 53202

ALS Worldwide

We are the parents of Ben Byer, diagnosed with ALS in 2002 at the age of 31. At the time, we didn’t know very much about ALS but immediately sought information from researchers, neurologists, clinical trials, forums and research studies and shared what we learned with Ben and other patients. Ben’s symptoms slowed but his condition continued to decline.

After Ben’s death in 2008, we created ALS Worldwide to continue the search for effective treatments.  More than 35,000 patients and their loved ones worldwide have benefited from the The ALS Worldwide Protocol, a program that encompasses recommendations for symptom relief medications, emotional support, personal care, positivism and hope.

Whether you are searching for treatments or need greater support from your medical team, you’ve come to the right place. Each of the sections below provide information, treatments and guidance. Download important information about symptom relief medications you can share with your medical team.  Take a moment to watch our brief, introductory video and listen to the podcasts that most interest you. Most importantly, take control of your life and gain a greater sense of hope and optimism for your future.

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Treatment Options

Recommendations, information and prescription details to review with clinicians and family members.

Symptom Relief Information
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Self Care

Improve the quality of your days through exercise, nutritional awareness and emotional well being.

Mind Body Spirit
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Watch, Listen and Learn

Video and podcast series provide the latest symptom relieving information. 

Listen to Podcasts
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Subscribe

Receive email newsletters to stay informed about the latest research and treatments.

Monthly Newsletters
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Connect

Complete an Online Profile to receive Individual Support.

Online Profile

More than 750,000 people around the world suffer from ALS at any given moment in time. Whether you have ALS or are close to someone who does, understanding what to expect can help you cope. In this section you can find basic information about ALS, and learn about early detection, diagnosis, and symptom management options.

About ALS/MND

In the United States, ALS is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND).

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What causes ALS/MND?

The causes of the vast majority of ALS cases are still unknown, although genetic factors are widely believed to contribute to disease susceptibility and perhaps to its time of onset and severity. 

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A New Kind of Diagnosis

By the time a person arrives at the neurologist’s office of an ALS clinic, he or she has probably seen two or three different doctors who suspect ALS but have not given a definitive diagnosis. 

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Early Symptoms

Symptoms may initially affect one of the legs, and people experience awkwardness when walking or running or they notice that they are tripping or stumbling more often. Other individuals first notice changes in voice and speech, spasms in muscles of the jaw, face, voice box, throat and tongue, and inappropriate excessive laughing and crying.

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Treatment Options

No cure has yet been found for ALS. The drug riluzole—the only prescribed drug approved by the US Food and Drug Administration (FDA) to treat ALS—prolongs life by 2-3 months but does not relieve symptoms.  However, ALS Worldwide is currently working with some of the world’s top neuroscientists to quickly develop the first truly effective treatments. 

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Reasons to be Hopeful

While tremendous work remains to be done to address the unmet medical needs of the estimated half a million ALS patients worldwide, there is more hope for the future than ever before.

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Resource Finder

If you or someone you know is affected by ALS, please realize that you’re not alone. The entire ALS medical and scientific community is working to provide programs, services, resources and opportunities to connect in your community. Find neurologists, multi-disciplinary clinics, support organizations and research institutions in your area by using ALS Worldwide's resource finder.

Fill out the form to search for care and research facilities in your area.