In the past ten years, more than 8000 ALS patients in more than 70 countries have sought advice, counsel, and support from Stephen and Barbara Byer of ALS WORLDWIDE. The aggregated information garnered from so many reflects a level of personal knowledge that is invaluable. Some of the most inventive and successful ideas for symptom management have come from patients themselves and their families. Through this clearing house, suggestions and information can be filtered to the many patients who most need it.
Included in this section is information on diet, exercise, excess phlegm, saliva issues, pseudo-bulbar lability, depression, retention of excess fluids, limb rigidity and spasticity, nutritional supplements, finger extension devices, exercises and more. Updates to this material will occur on a regular basis. If you have a particular interest or concern, or have information that you feel will be beneficial to others, please let us know so that it can be included. If you would like to discuss any of these issues, or perhaps something unique to you, please call or email Stephen Byer.