Newsflash:
ALS Worldwide is part of the ALS Family Community, working together to bring about awareness, support, beneficial treatments, and a cure for ALS.
Healing Choices
Lazarus Ember’s journey with ALS began in 2011 when he noticed his first symptom. However, it wasn’t until 2018 that he received a formal diagnosis. Throughout his battle with the disease, Lazarus experienced fluctuating symptoms, a phenomenon confirmed by Dr.…
Not Going Quietly
A rising star in progressive politics and new father, Ady Barkan’s career and family are upended when he is diagnosed with ALS at age 32. After a chance encounter with a powerful Senator on an airplane catapults him to national…
I Am ALS
Brian Wallach was diagnosed with ALS when his second child with his wife, Sandra Abrevaya, was born. Brian’s experience as an Obama staffer served as a foundation for finding a cure. The organization I AM ALS is revolutionizing how we…
ALS News Today
One of the best websites for information about current research.
Clinical Trials
This link will take you to all the current ALS/MND/ELA clinical trials going on in the world.
Your Personal Information and Emergency Room Card
In response to many patient and colleague requests, ALS Worldwide has created an informational ID and emergency room card that can assist those with ALS when driving a car or in public places, such as a restaurant or theater. When…
Range of Motion Exercises
Range of motion exercises are designed to help preserve flexibility and mobility. Because muscle has memory, which enables motor function to become improved the more it is practices, it appears highly beneficial for ALS patients to exercise in a moderate,…
Not Going Quietly
A rising star in progressive politics and new father, Ady Barkan’s career and family are upended when he is diagnosed with ALS at age 32. After a chance encounter with a powerful Senator on an airplane catapults him to national fame, Ady and a crew of activists storm across the country, igniting a once in a generation movement for healthcare for all Americans. Not Going Quietly is an amazing film that connects all of us with a courageous young man.
Not Going Quietly
A rising star in progressive politics and new father, Ady Barkan's career and family are upended when he is diagnosed with ALS at age 32.
WATCH NOW
I Am ALS
Brian Wallach was diagnosed with ALS when his second child with his wife, Sandra Abrevaya, was born. Brian’s experience as an Obama staffer served as a foundation for finding a cure. The organization I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policymakers, and offering vital resources for those with ALS.
Not Going Quietly
A rising star in progressive politics and new father, Ady Barkan's career and family are upended when he is diagnosed with ALS at age 32.
WATCH NOW
ClinicalTrials.Gov
This link will take you to all the current ALS/MND/ELA clinical trials going on in the world.
Your Personal Information and Emergency Room Card
In response to many patient and colleague requests, ALS Worldwide has created an informational ID and emergency room card that can assist those with ALS when driving a car or in public places, such as a restaurant or theater. When entering a hospital or other medical facility becomes necessary, medical practitioners will have immediate and accurate knowledge about your condition, medications, emergency contact and other related information.
There are two ways to obtain a card. You can insert your personal information and then print a copy on this page, or you can send us your mailing address and we will send you a card to complete and a clear plastic holder attached to an attractive lanyard that can be worn. If requested, we will be happy to include a copy of ALS Worldwide’s booklet “A Paradigm Shift in ALS/MND Clinic Care: Best Practices from the Patient Perspective,” and a DVD of Ben Byer’s award-winning film about his and others’ odyssey through ALS, “Indestructible.”
We are happy to provide these free materials for any patient, caregiver, family member or friend of a patient. Please send your request to info@alsworldwide.org and be certain to include recipient name, complete address and email address. We look forward to hearing from you soon.
Click here to view the United States version of the card.
Click here to view the United Kingdom version of the card.
Click here to view the Greek version of the card.
Click here to view the Spanish version of the card.
Click here to view the Chinese version of the card.
Not Going Quietly
A rising star in progressive politics and new father, Ady Barkan's career and family are upended when he is diagnosed with ALS at age 32.
WATCH NOW
Range of Motion Exercises
Range of motion exercises are designed to help preserve flexibility and mobility. Because muscle has memory, which enables motor function to become improved the more it is practices, it appears highly beneficial for ALS patients to exercise in a moderate, controlled manner. These exercises are easy to follow with the aid of a caregiver or friend.