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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

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ALS Worldwide
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Fitchburg, WI 53711‑7209

ALS Worldwide
July 06, 2016

ALS Reversals: A New Study By Duke Neurologist

"Richard Bedlack has treated more than 2,000 patients with ALS, the neurological condition also known as Lou Gehrig’s disease. Almost without exception, his patients get worse over time and eventually die.

Now, Dr. Bedlack, longtime head of Duke University’s ALS clinic, is focusing on a different kind of patient: someone who seems to be getting better.

ALS, or amyotrophic lateral sclerosis, progressively robs people of the ability to move their muscles and is fatal, usually within two to five years.

But in a small number of cases—Dr. Bedlack says he has verified 23 so far—patients report unexpectedly regaining lost motor functions for at least a year. Some attribute their improvement to supplements or experimental therapies, but acknowledge they can’t be certain why they started to improve.

Dr. Bedlack believes that studying these so-called “ALS reversals” and trying to determine what, if anything, separates these individuals from the overwhelming majority of others may lead to new understanding of the disease and, potentially, new therapies."

ALS Worldwide has partnered with Dr. Richard Bedlack for many years and appreciates and endorses his incredible contributions and dedication to the ALS community. To read the full article from the Wall Street Journal, please click here.