ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-414-831-6879.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
1800 North Prospect Avenue, Suite 4B
Milwaukee, WI 53202

ALS Worldwide

Privacy Policy

ALS Worldwide created this Privacy Statement to demonstrate respect for your privacy preferences and to disclose our information collection and sharing practices. Regardless of whether you provide us with your personal information via our website or in another manner (e.g. telephone, regular mail, Skype, GoToMeeting, or face-to-face), we strive to honor your privacy preferences.

BY ACCESSING AND/OR USING THE WEBSITE, YOU HAVE AGREED TO: 1) abide by the practices described in this Privacy Statement, as may be amended from time to time, and 2) the transfer, processing and maintenance of your personal and sensitive information in the United States of America.

THE PERSONAL INFORMATION WE COLLECT: Depending on the type of communication or transaction, the personal information we collect may include, but is not limited to, your name, postal address, zip code, telephone number, organization name, email address, credit card, bank or billing information, and all information provided through your online profile.

WHERE AND WHEN WE COLLECT PERSONAL INFORMATION: You will be asked to provide your personal information when making donations, completing an online profile, requesting communications, applying for a job with ALS Worldwide and/or in connection with other ALS Worldwide business (whether it is via the web site, e-mail, direct mail, Skype, GoToMeeting or telephone communications).

WE DO NOT KNOWINGLY COLLECT INFORMATION FROM CHILDREN: We do not knowingly collect or solicit personal information from anyone under the age of 18 or knowingly allow such persons to provide us with their personal information without parent or guardian consent. If you are under 18, do not send any information about yourself to us, including your name, address, telephone number, or email address, unless you have your parent's or guardian's permission. In the event we learn that we collected personal information from anyone under the age of 18, and we do not have a parent or guardian's consent, we will delete that information as quickly as possible. If you believe that we might have any information from or about anyone under the age of 18, please contact us at [email protected] or call us Monday through Friday, 8:00AM - 5:00PM Central Time at1-608-663-0920.

INFORMATION SECURITY: ALS Worldwide has a layered security in our systems and only designated employees have access to hard copies of your personal information. All on-line transactions are done on a secure server. This means that information entered on the transaction page is encrypted using SSL (Secure Socket Layer) before transmission. On secure pages, a "closed" lock symbol is displayed in the bottom part of your browser screen and the website address in the address bar at the top of the browser screen starts with an "https" instead of an "http". ALS Worldwide’s donation pages are verified using DonorPerfect’s SafeSave security system. SafeSave Vault ID's keep our donor's payment account data secure by using PCI compliant methods for encrypting, securely transmitting and storing credit card data in a PCI-certified gateway.

ALS WORLDWIDE MAY SHARE YOUR PERSONAL INFORMATION: Personal information will be shared internally at ALS Worldwide to complete your donations or to contact you about our ongoing work, discuss employment opportunities and ways that you can further support our efforts. Your personal information will also be used to provide you access to the various sections of our website that have been personalized for your needs. ALS Worldwide may share, rent or exchange donor names and postal addresses with third parties. Except in the limited circumstances outlined below, ALS Worldwide will never intentionally share your e-mail addresses, phone numbers or financial information.

EXCEPTIONS: ALS Worldwide reserves the right to share your personal information in certain situations:

1.    Credit Card Transactions, Electronic Fund Transfers, Payments by Check or Money Order and Online Transactions. ALS Worldwide hires third parties to provide credit card, bank, payment and information processing services and order fulfillment services. If you choose to make an application for employment, make a donation online, by phone, through the mail or by other means, we will share your personal information with our processing service providers. We make an effort to require all third party service-providers to hold personal information in strict confidence. While we believe these other companies are upstanding and will treat your personal information responsibly, we do not own or control them and cannot guarantee your privacy.

2.    Necessity. If we have reason to believe that there has been some inappropriate interference with or use of our website, communications, charitable services or personal or real property or if we have reason to believe that one of the ALS Worldwide website users, donors, employees or other related parties may have been injured or may have harmed some other party, we will disclose, without notice to you, personal information as we deem appropriate or if compelled by a legal or regulatory authority.

3.    Requesting Communications. We share information provided by our website visitors with third parties that provide services on our behalf – for example, to send communications. These service providers are not authorized by us to use or disclose the information except as necessary to perform services on our behalf or to comply with legal requirements.


If you would like to change your privacy preferences, please e-mail us at [email protected]; call us Monday through Friday, 8:00AM -5:00PM Central Time   at1-608-663-0920.

COOKIES AND PIXELS: A "cookie" is a small piece of data that is sent to your browser from the ALS Worldwide web server and is stored on your computer's hard drive. Cookies are used to collect non-identifying information about the user, such as Web surfing behavior or user preferences for a specific website. ALS Worldwide uses two different types of cookies – session based and persistent cookies. Session-based cookies expire at the end of a browser session so once you close your browser the cookie simply terminates. Persistent cookies remain on your computer until you remove them. Persistent cookies are used to provide internal Website analytics. You can manually delete all cookies including persistent ones within your browser privacy. You can also set your browser to not accept cookies although this may prevent you from using some of the services offered by the ALS Worldwide website. The mechanisms identified here are used to improve the user experience on the ALS Worldwide website, and are employed irrespective of "Do Not Track" requests.

WEBSITE LINKS: In order to provide certain services and goods at our website, we contract with other companies and individuals. These additional services and goods may include "links" to other websites from our website. THE ALS Worldwide privacy practices may not be applicable at any third-party sites. Anytime you leave the ALS Worldwide website, we have no control regarding what information may be collected about you, nor do we control what third-parties might do with the information. For example, when you click on a merchant's name at the ALS Worldwide site, you will be connected with the third-party merchant's website (even if the ALS Worldwide name/logo is on the screen). This merchant website should have its own privacy statement applying to transactions at their website. It is important that you review any privacy policies on third-party sites carefully, BEFORE you use any services or programs offered.

CHANGES TO PRIVACY PRACTICES: From time to time, ALS Worldwide may revise its privacy practices to address changing technology, security measures and website functionality. We strive to provide you with timely notice of these changes. Please contact us if you have any questions about changes to our practices.

CONTACTING ALS WORLDWIDE ABOUT PRIVACY PREFERENCES: If you wish to change your privacy preferences or have any questions please contact us.

Please call 1-608-663-0920 (8:00am-5:00pm CST, M-F) or email [email protected]  or write to ALS Worldwide, 5808 Dawley Drive, Fitchburg, WI 53711