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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

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ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide

Roar’s Story

September 28, 2017

Roar lives on the west coast of Norway in a town called Kristiansund, a region blessed with outstanding nature - ocean, fjords, alpine mountains and deep valleys.  In his words,

“It’s my playground - skiing, hiking, cycling, and boating. I work as the leader of a regional tourist board. What good fortune I have to have a job selling a region filled with world class scenery, exciting activities, and charming small towns. This is where I live with my loving family: my wife Kirsti and two strong and beautiful daughters, Leah and Erle, age 12 and 14. I’ve always lived a very good life. That is, until a beautiful day some months ago. I sat alone in a local hospital, with a neurologist who had very bad news and poor people skills: “You probably have ALS. Average life span is 3-4 years. Go home and prepare.” Continue Reading