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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide
July 10, 2017

Sal, a wonderful father with ALS. Two years after he is gone, we celebrate his life on Father’s day.

Sal and his family

And we will always celebrate the lives of all fathers with ALS and mourn the memory of those who are gone.

We first met Sal Koyuncu and his children six years ago in London, one of many meetings scheduled with ALS/MND/ELA patients in the UK who contact ALS Worldwide for our support. He was as loving, caring, thoughtful and intelligent a person as the photo shows. Not long before his death, he and his brother Mehmet, their dear friend Nick, our son-in-law Barry Wein and I (Steve Byer) fulfilled one of Sal's greatest wishes---to go to Graceland in Memphis and see the birthplace and celebrate the life of Elvis. It was a joyous, raucous, laughing, eating, goofy, music-filled, wonderful week. 

Just two months after Sal returned to his home in Hull, UK, he was unable to call for assistance via his toe-controlled emergency device during the night. His death was unexpected, shocking, tragic and a great loss to his children, brother, all other family , his enormous range of friends and loved ones, and very much to those of us at ALS Worldwide who embraced Sal as any family member would.

Rest in peace, Sal, and may you and all others lost to this dreadful, still not fully-explained , tragic disease be rocking with Elvis. We love, and miss, all of you.

ABOUT ALS WORLDWIDE
ALS Worldwide is the only nonprofit global health organization that provides FREE guidance and support to people living with ALS via video conference, email, social media, phone, and in-person visits in the USA and more than 130 other countries. We seek to help people live better and longer with ALS. Until there's a cure, there's ALS Worldwide. Visit alsworldwide.org to learn more.