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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

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ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide
July 11, 2017

LAUREN’S MOM REFUSES TO GIVE UP WITH THE SUPPORT OF HER BELOVED FAMILY

“My mom Jennifer was diagnosed with ALS in February 2016. I never thought something like this would ever happen to my family, especially my mom. She has always been ‘on the go’ from the time my siblings and I were growing up; taking us to dance, soccer practice, even being our grammar school mascot! She is the most involved, dedicated wife and mother I have ever known.

My parents celebrate 40 years together in 2017. Together they have three children, my older sister Brooke, my younger brother Kevin, and me. It has been tough on all of us in trying to figure out how this healthy, happy person was diagnosed with such a sad and devastating disease. About once a week, I ask myself about how she used to walk; this aspect of the disease bothers me most. I know my mom's inability to walk on her own frustrates the hell out of her. Regular tasks such as taking a shower and getting dressed are an everyday challenge.

She is truly my best friend and has been there for me through the toughest times in my life. I try not to think too much into it, but feel I would be lost without her. In April of 2016, my husband and I decided to move in with my parents, and I quit my job to become her caregiver. While this has been rough, I cannot imagine being without her most of the time.

My family and I will never give up...my mom, Jennifer Zoe, will never give up. I have hope one day we will find a cure for this disease.”

Lauren Lowry,
USA

Family support is crucial for a loved one living with ALS. Lauren’s story, like that of many other ALS families, highlights the importance and impact of such love on those affected by this disease.