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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

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ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide
May 23, 2017

James Engages In Selp-Help Activities To Fight The Challenges Presented By ALS

"After 44 years of service, I retired from my company. It was during my very last year at work that I noticed my left hand (my dominant side) and arm would continuously lose function. I then spent two years seeing doctors until I was finally diagnosed with ALS one year ago.

Since my diagnosis, I have lost most of the strength in the limbs on my left side. My ability to walk has also been severely impaired because of balance issues and pain in my legs. Most things I loved to do - working in the yard, going to the gym, cycling, and even photography - have all been eliminated from my routine.

I have three children as well as three beautiful grandchildren who are involved in sports, but I often lack enough energy to support their endeavors. Time and energy are things which retirement was supposed to provide!

My wife of 50 years has been tremendously supportive, taking responsibility for my chores such as taking out the trash, going to the store, and even cooking (which I initially took over after retirement). She now limits going out, for fear I might do something ‘stupid’ and/or fall.

In spite of the challenges ALS presents, I continue to help myself by doing yoga, meditation, and getting massage therapy. What is most important for me is keeping a positive attitude.

I have an army of friends and relatives who stand ready to support and pray for me. At the end of the day, I know I am still truly blessed and am doing my best to understand that everything which happens to me is the best possible thing!"

Learn more about the benefits of meditation here: http://alsworldwide.org/care-and-support/article/the-brilliance-and-benefit-of-meditation-for-those-with-als. Find more self-help techniques and activities at http://alsworldwide.org/care-and-support/category/self-help.