One of the most effective ways to build community, raise awareness, advance research and educate the public about ALS/MND is to "put a face on the disease." Facts and figures alone just can't convey whom ALS/MND affects-our brothers and sisters, our fathers and mothers, husbands and wives, our children, best friends and those we have yet to meet.
Sharing stories and connecting with others who have been through similar experiences reminds us that we are not alone. It's also a meaningful way to honor someone living with the disease or memorialize a relative, friend, neighbor, or colleague. Find stories and videos below and share your own unique perspective by clicking on the button to the right.
Would you like to share your story? Here are some of the subjects to consider and please add a photo of yourself either alone or with family and friends. If you have any questions, please contact us at firstname.lastname@example.org.
Before you get started, please consider the following questions:
What do you most want other people to learn about ALS/MND?
What would you want to share with others about your experience living with ALS/MND?
What advice would you give to someone newly diagnosed? Or to their loved ones?
What helps you cope—physically, mentally, emotionally, spiritually?
What has been the most difficult part of living with ALS/MND?
What keeps you positive despite the daily challenges of living with the disease?
How has ALS Worldwide helped you?