|
ALS WORLDWIDE Publications
ALS CLINIC AND HOSPITAL OVERVIEW: MAJOR PROJECT 2012
A “Best Practices Operational Guide for ALS Clinics” has been initiated with the review and evaluation of Massachusetts General, Emory University, Duke University, Forbes Norris, Johns Hopkins University, SUNY, Houston Neurological Institute and many others already scheduled throughout 2012 and into 2013. The publication of this study, planned for release mid 2013, will be based upon the in-depth review and evaluation of more than twenty of the most effective ALS clinics in the United States and internationally. The focus is to improve care for ALS patients and encourage broader clinical trial participation, so essential in the search for a cure.
ISRAEL: COMMITMENT TO ALS
The most recent ALSWW publication, Israel: Commitment to ALS, is now available. First distributed at the 2011 World Stem Cell Summit in Pasadena, CA, it includes important information about Israel's ALS medical and research community and their extensive accomplishments. Interviews, observations and relevant historical information at various universities and hospitals are included. We appreciate the support we received from the Sharna and Irvin Frank Foundation, The Sitt Family Foundation and the Lillian Jean Kaplan Foundation to complete this project. This publication is available on this webiste. For those who wish to receive a hard copy free of charge mailed to them, please send your mailing information to Publications. Multiple copies are available without charge for any ALS organization, clinic, support group or hospital neurology department. Requests are welcoming at Publication.
A PATIENT'S PATH THROUGH THE MAZE
OF STEM CELL TRANSPLANTATION
Published in 2010, A Patient's Path Through the Maze of Stem Cell Transplantation has been distributed to nearly 2500 individuals, ALS clinics and facilities. This 24 page book provides a closer look at the science of stem cells, an evaluation of available procedures and clinical studies, a rating of worldwide facilities and background information about the ALS WORLDWIDE organization. This publication is available on this webiste. For those who wish to receive a hard copy free of charge mailed to them, please send your mailing information to Publications. Multiple copies are available without charge for any ALS organization, clinic, support group or hospital neurology department. Requests are welcoming at Publication.
|
