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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide

ALS Worldwide can help you understand and cope with your diagnosis, explain treatment options and provide guidance on a wide variety of important topics.
We do not offer or purport to offer medical advice to ALS patients or their families.

We work with patients, families and other loved ones to help you make informed decisions, minimize symptoms, and improve quality of life. Our various recommendations should be discussed with family and friends, caregivers, neurologists, physicians and other medical practitioners.

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Complete the online
profile form

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Contact

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We’ll contact you after reviewing your profile

Connect

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Let’s talk via videoconference or by phone

Review

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Review our recommendations with family and clinicians

Ongoing Support

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Continue receiving support from us via videoconference, email, phone, in-person visits and online resources

More than 500,000 people around the world suffer from ALS at any given moment in time. Whether you have ALS or are close to someone who does, understanding what to expect can help you cope. In this section you can find basic information about ALS, and learn about early detection, diagnosis, and symptom management options.

About ALS/MND

In the United States, ALS is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND).

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What causes ALS/MND?

The causes of the vast majority of ALS cases are still unknown, although genetic factors are widely believed to contribute to disease susceptibility and perhaps to its time of onset and severity. 

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A New Kind of Diagnosis

By the time a person arrives at the neurologist’s office of an ALS clinic, he or she has probably seen two or three different doctors who suspect ALS but have not given a definitive diagnosis. 

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Early Symptoms

Symptoms may initially affect one of the legs, and people experience awkwardness when walking or running or they notice that they are tripping or stumbling more often. Other individuals first notice changes in voice and speech, spasms in muscles of the jaw, face, voice box, throat and tongue, and inappropriate excessive laughing and crying, termed.

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Treatment Options

No cure has yet been found for ALS. The drug riluzole—the only prescribed drug approved by the US Food and Drug Administration (FDA) to treat ALS—prolongs life by 2-3 months but does not relieve symptoms.  However, ALS Worldwide is currently working with some of the world’s top neuroscientists to quickly develop the first truly effective treatments. 

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Reasons to be Hopeful

While tremendous work remains to be done to address the unmet medical needs of the estimated half a million ALS patients worldwide, there is more hope for the future than ever before.

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Resource Finder

If you or someone you know is affected by ALS, please realize that you’re not alone. The entire ALS medical and scientific community is working to provide programs, services, resources and opportunities to connect in your community. Find neurologists, multi-disciplinary clinics, support organizations and research institutions in your area by using ALS Worldwide's resource finder.

Fill out the form to search for care and research facilities in your area.