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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide
July 28, 2017

Time to be Hopeful

While tremendous work remains to be done to address the unmet medical needs of the estimated half a million ALS patients worldwide, there is more hope for the future than ever before. 

Just now, the new drug Radicava (generic name edaravone) has been FDA approved and many in the ALS community have been using edaravone through ALS Worldwide or will begin to use it through their insurance-covered program now being established by MT Pharma US. Edaravone has dramatically furthered the now 22-year old riluzole treatment and several other new compounds are taking shape.

Symptom management has improved significantly. The pursuit of personalized treatment through a quality multidisciplinary clinic, maintaining muscle mass through exercise, focusing on optimal nutrition, and developing a positive attitude can help patients live longer and enjoy more productive lives.

Never before have we seen such a high level of activity and enthusiasm among ALS researchers. Each day brings new reasons to be encouraged that scientific breakthroughs are within reach, and we will not quit until ALS is a controllable disease or syndrome. Until then, we’re on a mission to spread hope and share this simple message: Each of us has what it takes to be part of the solution and galvanize progress toward a cure.