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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide
January 27, 2015

A Paradigm Shift in ALS/MND Clinic Care

A Paradigm Shift in ALS/MND Clinic Care: Best Practices from the Patient Perspectivewritten by ALS Worldwide in 2013, is a concise presentation of information for patients, family members, caregivers, neurologists and clinics. Self care, treatments available, research efforts, patient care and resources are all presented in easy to understand language as well as a general overview of the many ways patients can maintain a positive view of the present and the future.

This effort required extensive travel to individual clinics throughout the world over a two year period, from 2011 to 2013.  We visited more than 40 clinics during this time and wish we could have visited many more. The purpose was to collect relevant information that could be shared not only with patients but also with neurologists, physical therapists, speech therapists, dieticians and many others who provide care to ALS/MND patients.  The hope was to help existing clinics appreciate what they have been able to achieve, share their approach and beliefs with others and help them improve upon what already exists.  Perfection was never the objective but providing hope and benefit to patients and their familes was, and remains, a high priority for us.

This book is available in hard copy for anyone who wishes to receive it.  Just send an email to us or call with your address information and we'll be happy to mail you a copy. Or it can be viewed in its entirety here on our website in pdf.  It's also possible to download and print a hard copy for personal use if preferred.