PUBLIC ADVOCACY AND AWARENESS
Knowledge is power. Even now, Amyotrophic Lateral Sclerosis remains a little known disease by most. ALS strikes without warning -- anyone, anywhere, anytime. Ask ten people and two know someone who has been affected by this disease.
ALS WORLDWIDE speaks out on behalf of those who cannot speak for themselves. The rapid paralysis that overtakes the body consumes lives with a vengeance. Family members often become overwhelmed and exhausted from the day-to-day care coupled with household chores, family needs, personal care, financial stress and professional demands. Little energy remains to bring focus and attention to the plight of the ALS community.
Educating the public, reaching out to public officials, demanding greater research support by the government on both state and federal levels are priorities accomplished in two very distinct ways. One is through screenings of the film, “Indestructible” which offers an intimate, visceral experience of the life of an ALS patient as it explores the life of Ben Byer and his journey. A personal DVD copy of the film can be obtained at www.indestructiblefilm.com. In addition, outreach programs, demonstrations and literature distributed to the public, are integral to the aspirations of ALS WORLDWIDE.