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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide

Personal Experience

Ben Byer, Israel, 2005

In 2002, Ben Byer was diagnosed with ALS/MND at the age of 31. From that moment on, Stephen and Barbara Byer devoted their lives to finding an effective way to stop, slow or reverse Ben’s disease. 

Unwilling to accept that nothing could be done for their son and dismayed by the lack of resources available, Stephen and Barbara sought out the most promising research, drug trials, and treatments for symptom relief for Ben.

For six years, they consulted with neuroscientists, neurologists, medical specialists and ALS/MND patients and their loved ones from around the world. In addition to sharing each new discovery with Ben, Stephen and Barbara passed on what they learned to others struggling with the devastating effects of the disease via Internet chat rooms, email, Skype and phone.

Despite their tireless efforts, Ben passed away from the disease in 2008 at the age of 37. Shortly after his death, Stephen and Barbara founded ALS Worldwide to honor their son’s memory, keep his fight alive and ensure that no one has to face ALS/MND alone.

Today, each member of ALS Worldwide draws upon their firsthand knowledge of the disease to provide guidance, compassion and hope to ALS/MND patients and their families.

Ben Byer, Israel, 2005
Ben with his siblings at Cinequest Film Festival, 2007
Ben with his entire family, 2008