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ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at [email protected] or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide

Passionate Collaboration

The ALS Worldwide Consortium Members meet in Sheffield, UK at SITraN in April 2014

Even with recent scientific and technological advances, from the decoding of the human genome to stem cell technology, the promise of medical progress remains unfulfilled for ALS/MND patients and their loved ones. There is currently only one drug; FDA approved in 1995, to systemically treat ALS—and it merely prolongs survival by two to four months.

Why? There are many factors, including the sheer complexity of the disease, but intellectual, structural, and financial obstacles have also prevented any significant breakthroughs. 

Scientists require collaborators with diverse research expertise, skills, and specializations to advance their discoveries. Yet, too often researchers work in isolation or in competition with one another without producing results.

That is why ALS Worldwide regularly brings together top experts from all sectors of medical research to increase dialogue, encourage partnerships and accelerate the pace of discovery and innovation. We are passionate in our commitment to people affected by ALS/MND and actively seek out the best and the brightest, those known for their scientific excellence, collaborative approach, patient-centric focus and sense of urgency. 

ALS Worldwide funds, facilitates and shares groundbreaking research that helps everyone understand the disease’s causes, determine how best to prevent it, and discover ways to cure it as quickly as possible. While ALS Worldwide is a small nonprofit organization, we believe our focused and flexible approach can make a big impact on research.

The ALS Worldwide Consortium Members meet in Sheffield, UK at SITraN in April 2014
Meeting with Researchers at Pennsylvania State Personalized Medicine Facility in 2014