Contact

ALS Worldwide welcomes any questions or comments you might have.  We provide free, personalized and confidential support services to anyone in the ALS community—whether you are a patient or a loved one, friend, health care professional or caregiver of someone diagnosed.

Get help now! Fill out the Online Profile Form or if you would prefer to talk with someone by email or phone first, please contact us at info@alsworldwide.org or 1-608-663-0920.

For all other inquiries, please use the email form to the right and we will respond promptly to your request.Thank you.

ALS Worldwide
5808 Dawley Drive
Fitchburg, WI 53711‑7209

ALS Worldwide

Staff

Stephen B. Byer

Co-Executive Director

Stephen Byer combines the experience of over fifty years as a successful business entrepreneur with the skills of an exceptional marketing specialist. As a consultant, Steve served the fine art community by bringing together art collectors, dealers and artists in mutually beneficial ways.  As an entrepreneur, Steve built a successful business that spanned over 35 years.

Steve’s attributes have served the ALS/MND patient and family communities for the past 14 years in both patient care and support and in developing research efforts.Today, his marketing skills assist researchers and scientists as they search for ways to fund their efforts. By applying his exceptional capabilities to the world of scientific research, patient care and support, Steve has been able to bridge the gap between the worlds of scientists, researchers, ALS/MND patients and philanthropists. He has become a support pillar for the ALS community through his dedication and devotion.

Barry M. Wein

Deputy Executive Director

Barry M. Wein has more than 15 years of fundraising and communications experience in the nonprofit sector. Prior to joining ALS Worldwide, Mr. Wein directed fundraising communications for the Wisconsin Historical Society, including their successful $77 million capital campaign. He earned his Bachelor of Arts Degree from the University of Wisconsin-Madison and his Masters in Social Work from the University of Washington.

Tamara Curtis

Bookkeeper

Barbara L. Byer

Co-Executive Director

As Infant, Child and Family Specialist, Barbara Byer offers both personal and professional experience and expertise to families struggling to support their ALS patients and maintain a sense of dignity and well being for themselves, their children and their relationships. She has developed a deep level of sensitivity supporting her son Ben as he searched for independence within the confines of dependency. With a Masters degree in both Early Childhood Development and Humanities, she is qualified to offer her perspective on ways to help families cope successfully. Her background includes Director of the Family Resource Center of Iowa County, college instructor at the College of Lake County, Personal Growth Facilitator and volunteer for numerous community organizations.

Kenzie Trezise

Digital Operations Coordinator

Kenzie Trezise grew up in Twin Lakes, WI. She is a graduate of the Arts Management program at the University of Wisconsin-Green Bay, the result of a lifelong desire to pursue music venue and tour management. Inspired by a yearlong internship in nonprofit marketing and media, she decided to pursue a career in nonprofit work where she could use her degree and skills to help others instead.

After ALS hit close to home in the form of a family friend’s illness and passing, Kenzie felt drawn to organizations that were striving to find a cure. She has always felt best in jobs with a real purpose and ALS Worldwide’s mission and drive were exactly what she was looking for. Kenzie is inspired on a daily basis by the hard work of everyone at ALS Worldwide and is proud to be a part of an organization that provides such excellent support to those with ALS and their love ones.

Dr. James Neubrander

Medical Director

James A. Neubrander, M.D., F.A.A.E.M., joined ALS Worldwide on January 2, 2017 as our new Medical Director, bringing excellent skills, knowledge and more than 25 years of experience to our organization. He received his medical degree from Loma Linda University School of Medicine in California in 1975.

Dr. Neubrander is often referred to as “The Father of Methyl-B12” due to his pioneering work showing its profound effect on autism and other neurological disorders. As a Fellow of the American Academy of Environmental Medicine, Dr. Neubrander is uniquely qualified to share insights and awareness with the entire ALS Worldwide community. 

Stephen and Barbara Byer, Co-Executive Directors of ALS Worldwide, originally met Dr. Neubrander in 2008, while exploring the benefits of the methylcobalamin form of B12 injections for the ALS patient community.  Prior to 2003 methylcobalamin (methyl-B12) was rarely heard of as an effective treatment option for neurological diseases, nor was it commonly found in supplements.  That all changed after Dr. Neubrander gave his first lecture about the powerful clinical benefits of methyl-B12 at the Defeat Autism Now! Conference in Philadelphia, May 2003.

Since that point in time methyl-B12 has become one of the most commonly used treatments for autism and ALS and is a common ingredient in many supplements. Though Dr. Neubrander’s practice focuses on autism, where he has become a beacon of light for parents of autistic children suffering from this devastating neurological disease, his current interest also focuses on ALS due to what he describes as their ‘profound similarities’.  Dr. Neubrander’s autism treatments increase healing and repair, and he believes that these approaches have the potential to decrease the speed of decline for ALS patients while at the same time improving quality of life.

Stephen B. Byer

Co-Executive Director

Stephen Byer combines the experience of over fifty years as a successful business entrepreneur with the skills of an exceptional marketing specialist. As a consultant, Steve served the fine art community by bringing together art collectors, dealers and artists in mutually beneficial ways.  As an entrepreneur, Steve built a successful business that spanned over 35 years.

Steve’s attributes have served the ALS/MND patient and family communities for the past 14 years in both patient care and support and in developing research efforts.Today, his marketing skills assist researchers and scientists as they search for ways to fund their efforts. By applying his exceptional capabilities to the world of scientific research, patient care and support, Steve has been able to bridge the gap between the worlds of scientists, researchers, ALS/MND patients and philanthropists. He has become a support pillar for the ALS community through his dedication and devotion.

Barbara L. Byer

Co-Executive Director

As Infant, Child and Family Specialist, Barbara Byer offers both personal and professional experience and expertise to families struggling to support their ALS patients and maintain a sense of dignity and well being for themselves, their children and their relationships. She has developed a deep level of sensitivity supporting her son Ben as he searched for independence within the confines of dependency. With a Masters degree in both Early Childhood Development and Humanities, she is qualified to offer her perspective on ways to help families cope successfully. Her background includes Director of the Family Resource Center of Iowa County, college instructor at the College of Lake County, Personal Growth Facilitator and volunteer for numerous community organizations.

Barry M. Wein

Deputy Executive Director

Barry M. Wein has more than 15 years of fundraising and communications experience in the nonprofit sector. Prior to joining ALS Worldwide, Mr. Wein directed fundraising communications for the Wisconsin Historical Society, including their successful $77 million capital campaign. He earned his Bachelor of Arts Degree from the University of Wisconsin-Madison and his Masters in Social Work from the University of Washington.

Kenzie Trezise

Digital Operations Coordinator

Kenzie Trezise grew up in Twin Lakes, WI. She is a graduate of the Arts Management program at the University of Wisconsin-Green Bay, the result of a lifelong desire to pursue music venue and tour management. Inspired by a yearlong internship in nonprofit marketing and media, she decided to pursue a career in nonprofit work where she could use her degree and skills to help others instead.

After ALS hit close to home in the form of a family friend’s illness and passing, Kenzie felt drawn to organizations that were striving to find a cure. She has always felt best in jobs with a real purpose and ALS Worldwide’s mission and drive were exactly what she was looking for. Kenzie is inspired on a daily basis by the hard work of everyone at ALS Worldwide and is proud to be a part of an organization that provides such excellent support to those with ALS and their love ones.

Tamara Curtis

Bookkeeper

Dr. James Neubrander

Medical Director

James A. Neubrander, M.D., F.A.A.E.M., joined ALS Worldwide on January 2, 2017 as our new Medical Director, bringing excellent skills, knowledge and more than 25 years of experience to our organization. He received his medical degree from Loma Linda University School of Medicine in California in 1975.

Dr. Neubrander is often referred to as “The Father of Methyl-B12” due to his pioneering work showing its profound effect on autism and other neurological disorders. As a Fellow of the American Academy of Environmental Medicine, Dr. Neubrander is uniquely qualified to share insights and awareness with the entire ALS Worldwide community. 

Stephen and Barbara Byer, Co-Executive Directors of ALS Worldwide, originally met Dr. Neubrander in 2008, while exploring the benefits of the methylcobalamin form of B12 injections for the ALS patient community.  Prior to 2003 methylcobalamin (methyl-B12) was rarely heard of as an effective treatment option for neurological diseases, nor was it commonly found in supplements.  That all changed after Dr. Neubrander gave his first lecture about the powerful clinical benefits of methyl-B12 at the Defeat Autism Now! Conference in Philadelphia, May 2003.

Since that point in time methyl-B12 has become one of the most commonly used treatments for autism and ALS and is a common ingredient in many supplements. Though Dr. Neubrander’s practice focuses on autism, where he has become a beacon of light for parents of autistic children suffering from this devastating neurological disease, his current interest also focuses on ALS due to what he describes as their ‘profound similarities’.  Dr. Neubrander’s autism treatments increase healing and repair, and he believes that these approaches have the potential to decrease the speed of decline for ALS patients while at the same time improving quality of life.

Board of Directors

  • Stephen B. Byer, Co-Executive Director
  • Barbara L. Byer, Co-Executive Director
  • Thomas Basting, Sr., Legal Counsel
  • Barry M. Wein, Deputy Executive Director
  • Sarah A. Byer
  • James P. Bennett Jr., MD, PhD, Chief Scientific Officer
  • Kenneth M. Olson, Director; President and CEO, POKO Partners LLC

Scientific Advisors

  • Professor Dame Pamela J Shaw, MBBS MD FRCP FAAN FANA FMedSci, University of Sheffield, UK
  • Achilleas Gravanis, PharmD, PhD, University of Crete Medical School, Greece
  • Ghazaleh Sadri-Vakili, PhD, Harvard Medical School, Massachusetts
  • James Broach, PhD, Penn State Hershey Medical Center, Pennsylvania
  • Professor Nicholas D. Mazarakis, B.Sc., Ph.D., Imperial College, London, UK

Medical Advisors

  • James A. Neubrander, MD, F.A.A.E.M., Medical Director
  • Zachary Simmons, MD, Penn State Hershey Medical Center, Pennsylvania
  • Ammar Al-Chalabi, PhD FRCP DipStat, Kings College, London, UK
  • Hiroshi Mitsumoto, MD, DSc, Columbia University Medical Center, New York
  • Jonathan Katz, MD, Forbes Norris MDA/ALS Clinic, California
  • Robert Miller, MD, Forbes Norris MDA/ALS Clinic, California
  • Richard Bedlack, MD, PhD, MS, Duke ALS Clinic, North Carolina
  • Peiman Hematti, MD, Clinical Cell Therapy Trials, University of Wisconsin, Wisconsin
  • Paul J. Kachoris, M.D. Board Certified Pediatrician, and Child, Adolescent, and Adult Psychiatrist, Illinois
  • Raymond Onders, MD, Case Western Reserve University School of Medicine, Cleveland OH

Patient Family Advisors

  • Matt Chaney, California
  • Anthony Papoulias, Greece
  • Debbie and Bill Gattoni, New Jersey
  • Thomas Murphy, Virginia

ALS Worldwide Ambassadors

  • Keith Johnson, Louisiana
  • David Sitt, Mexico City
  • Thomas Ryan, Sr., California
  • David Garber, Massachusetts